Patient story: Berknesh

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Berknesh is a 40 year old woman who was diagnosed with HIV 4 years ago, not long after her husband died (he was 30 years older than her). He was Romanian and they had met at the Romanian embassy where they both worked. After their marriage, they lived in a comfortable house, with nice clothes and possessions. They had a son together, who is now aged 10.

Four and a half years ago, Berknesh’s husband was involved in a serious car accident and could no longer work. He subsequently died from his injuries. After her husband’s death she became depressed and bit by bit had to sell their possessions to survive. In order to earn some money, Berknesh became a sex worker which is how she caught HIV. She declined to take anti-retroviral medication for her disease as she felt the disease was a punishment from God for her sex work. She now lives in a one-room house and is struggling to pay ETB 3,000 (£42) per month in rent. Last year she became unwell from HIV and was so desperate that she went to the local woreda office (council), where they gave her some food support and referred her to Hospice Ethiopia. After several visits from Hospice Ethiopia’s nurses, she was persuaded to take her anti-retroviral medication, and her condition improved, but she says she feels ashamed of the way she looks (she has lost weight, has thinned hair, and skin nodules) and so has no contact with her family and former friends. She receives financial and food support from Hospice Ethiopia. Her mood remains low as she constantly thinks about all the things she has lost since her husband died. She has contacted the Romanian embassy about receiving her husband’s pension but has been told she does not have the right documentation to claim his pension. She has no contact with her husband’s family in Romania including his older son from a previous marriage.

Kalkidan spent time talking with Berknesh, providing psychological support and encouragement. Long-term financial support from Hospice Ethiopia’s Tewolde Medhane fund is not sustainable. As Berknesh’s disease is now stable on medication, she needs to find employment as her prognosis is good.

An evening with General the Lord Dannatt GCB CBE MC DL

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Hospice Ethiopia UK is enormously grateful to Richard Dannatt for giving a fascinating talk about Churchill and his role in the D-Day landings of Normandy. Through documents and letters from the Churchill Archives Centre in Cambridge, Richard gave the audience a vivid sense of the huge risks involved in the planning and execution of Operation Overlord, the largest land, sea and air operation ever staged. It proved to be a major turning point in the Second World War.

Thank you also to the enormously supportive audience, who enabled us to raise £1,730 through ticket sales and a raffle to support the work of Hospice Ethiopia.

Patient story: Ayana

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Last November our trustees visited Ayana with HE Nurse Kalkidan. She is a 40 year old female patient with HIV and severely reduced mobility due to a presumed toxoplasmosis infection which damaged her nervous system 21 years ago.

She was married to a policeman and has one daughter. Following domestic violence she became divorced and has been bedridden due to her damaged nervous system for the past 21 years. Her sister brought up her daughter. Ayana was referred to Hospice Ethiopia by a Community Volunteer Worker. On the first visit the nurse found Ayana lived alone and was severely depressed and suicidal. Her 24 year old daughter visits her fortnightly to wash her.

Hospice Ethiopia has arranged for Ayana to receive a monthly grant from the Tewolde Medhane fund which allows her to pay for a maid to prepare her food and be a companion to her. She lives in her parent’s house, but her sister wants her to move out so that the house can be sold and the money divided between them. This is a cause of great anxiety to her.

Nurse Kalkidan organised the prescriptions for several medications: Anti-retroviral medication, amitriptyline for neuropathic pain, co-tramoxazole, and Baclofen. Kalkidan also issued some antacid oral liquid as Ayana had a new complaint of abdominal distension and indigestion. Despite being bed-bound for 21 years her skin and nutrition were good. She is continent and her bowels are open daily.

Ayana told Nurse Kalkidan that she felt she was only alive today due to Hospice Ethiopia’s regular visits to her.

The Big Give 2024

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Thank you, thank you, thank you! We asked you to help us reach our target of £11,500 in the annual Big Give Christmas Challenge and we exceeded it! With 63 donations, £5,956 was given which means with our matching pot and Gift Aid an amazing £12,655 has been raised. This will enable Hospice Ethiopia to fund an additional nurse and a new Social Worker in 2025, thereby increasing their capacity to care for people approaching the end of their lives. Ephrem, the Director of Hospice Ethiopia said “Wow wow wow…congratulations! Thank you so much and thank you all the donors!”

The Big Give 2024

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Many of you have generously made donations in the past that have helped provide care for patients at Hospice Ethiopia. We’re very excited to let you know that Hospice Ethiopia UK has been selected again this year to participate in The Big Give Christmas Challenge 2024, the UK’s largest matched funding campaign.
 
We hope to raise £11,500 this year to increase Hospice Ethiopia’s capacity to care for more patients as they approach the end of their lives. We hope to raise enough money to fund an additional nurse and a new Social Worker to the team, but we can’t do this without your help.

One donation, twice the impact.

Donations to this project will be matched for 7 days, from 12pm on Tuesday 3rd December – Tuesday 10th December 2024.  So, every pound you give during that period means two pounds for Hospice Ethiopia.
 
Only donations made through the official Big Give website will count for match funding so put the date in your diary now! 

Patient story: Kia

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Jamie and Sue visited Kia during their recent trip to Addis Adaba. She is a 35 year old female patient with breast cancer. She follows the Muslim faith from which she derives great spiritual support.

She received her diagnosis 4 years ago and following a biopsy she underwent a left mastectomy at the Tikur Anbessa Specialized Hospital (TASH), and subsequently received 8 cycles of chemotherapy. In June 2024 she developed vaginal bleeding and underwent further surgery for ovarian cancer, along with an endometrial polyp. The ovarian cancer is a probable secondary cancer to the original breast cancer. She has been advised that further chemotherapy will not be beneficial.

She lives with her husband and 3 children aged 9, 8, and 5 in a single room house. Her husband sells fruit and vegetables from a small road-side stall. Her 8 year old daughter has severe life-long disabilities. She is unable to walk, talk, or feed herself so needs round the clock care but does go to a local school for special needs during weekdays. Kia receives a monthly grant from the Tewolde Medhane fund and intermittent food support from Hospice Ethiopia.

She has been prescribed anastrozole (hormone treatment) for her breast cancer, which is giving her menopausal type symptoms. She takes ibuprofen as required for back pain and also Sildenafil for Reynaud disease-type symptoms of her fingers. This medication is usually prescribed for male impotence and we shared some giggles as we suggested keeping it away from her husband!

Despite the very difficult health, family, and financial situation, Kia was cheerful and at peace with herself. She commented she would not be able to cope without the support from the team from Hospice Ethiopia.

Calendars and Christmas cards for sale now!

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We now have beautiful 2025 calendars available for sale. We are enormously grateful to professional journalists Fred Harter and Michele Spatari for providing the unique photographs of Ethiopia – one each month for our calendar. These are available from Hospice Ethiopia UK and from the Christmas card pop up shop in Norwich, priced at £10 + P&P. Please contact Sue (info@hospiceethiopia.org.uk). If you feel able, please add an extra donation to your bank transfer to support the work of Hospice Ethiopia. 

Christmas Cards 

Order your Christmas cards now to avoid disappointment! We have 3 new designs this year exclusive to Hospice Ethiopia – see below. Cards are sold in packs of 10, at £5 per pack (+ postage if applicable), and are available from Marion (celia.bryce5@gmail.com), Sue (info@hospiceethiopia.org.uk) or the pop-up Christmas card shop at St Peter Mancroft Church, Norwich (which opens on 15th October 2024).