Patient story: Ayana

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Last November our trustees visited Ayana with HE Nurse Kalkidan. She is a 40 year old female patient with HIV and severely reduced mobility due to a presumed toxoplasmosis infection which damaged her nervous system 21 years ago.

She was married to a policeman and has one daughter. Following domestic violence she became divorced and has been bedridden due to her damaged nervous system for the past 21 years. Her sister brought up her daughter. Ayana was referred to Hospice Ethiopia by a Community Volunteer Worker. On the first visit the nurse found Ayana lived alone and was severely depressed and suicidal. Her 24 year old daughter visits her fortnightly to wash her.

Hospice Ethiopia has arranged for Ayana to receive a monthly grant from the Tewolde Medhane fund which allows her to pay for a maid to prepare her food and be a companion to her. She lives in her parent’s house, but her sister wants her to move out so that the house can be sold and the money divided between them. This is a cause of great anxiety to her.

Nurse Kalkidan organised the prescriptions for several medications: Anti-retroviral medication, amitriptyline for neuropathic pain, co-tramoxazole, and Baclofen. Kalkidan also issued some antacid oral liquid as Ayana had a new complaint of abdominal distension and indigestion. Despite being bed-bound for 21 years her skin and nutrition were good. She is continent and her bowels are open daily.

Ayana told Nurse Kalkidan that she felt she was only alive today due to Hospice Ethiopia’s regular visits to her.

Sue delighted to receive MBE

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Chair of Hospice Ethiopia UK Sue Mumford has been made an MBE in the New Years Honours list in recognition of her services to palliative care in Ethiopia.

Sue has been involved in the charity since 2012, when a group of health care professionals at Priscilla Bacon Lodge started to support Hospice Ethiopia. She became chair of the group in 2016. Since 2012 Sue has visited Ethiopia thirteen times, most recently in November 2024 when she and her husband, retired doctor Jamie Mumford, helped run a training course in palliative care in the country.

Hospice Ethiopia was originally founded in 2003 by an Ethiopian nurse, Sister Tsigereda, who was saddened at the number of people who were left to die without adequate care in Addis Ababa, Ethiopia’s capital. Before that, there was no palliative care in the country, which now has a population in excess of 120 million. Over the years, with help from HEUK, the hospice has looked after thousands of patients, bringing relief to their suffering. Just as importantly, the hospice is a centre of excellence in Ethiopia and beyond, training hundreds of medics who in turn bring relief to thousands of desperate people and their families in Ethiopia and beyond. Support from the UK has been essential in this work, with HEUK raising around £60,000 a year. Trustees claim no expenses for their travel to Ethiopia so that all donations go where they’re really needed.

Sue works work closely with Hospice Ethiopia’s director, Ephrem Abathun, and has monthly calls with him so that HEUK can understand their needs and challenges and share in their successes.

Jill Morgan, one of HEUK’s trustees, says “The word ‘tirelessly’ is sometimes overused, but in Sue’s case it’s an understatement. I don’t think there is ever a time when she’s not either doing something for the charity or figuring out ways to progress its vital work. As well a leading the volunteers in the UK, she is always working at the heart of every fundraising event – everything from giving a talk to washing dishes, she’s there doing it. She thoroughly deserves this honour.”

Sue says “I am deeply honoured to receive this recognition, but this MBE is not just for me – it represents the incredible dedication of everyone at Hospice Ethiopia UK and our partners in Ethiopia. Together, we are ensuring that people with life-limiting illnesses can face their final days with dignity, comfort, and compassion. I hope this honour shines a light on the importance of palliative care and inspires further support for this vital work. I couldn’t have done any of this without fantastic support from my husband, family, trustees, and volunteers.”

The Big Give 2024

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Many of you have generously made donations in the past that have helped provide care for patients at Hospice Ethiopia. We’re very excited to let you know that Hospice Ethiopia UK has been selected again this year to participate in The Big Give Christmas Challenge 2024, the UK’s largest matched funding campaign.
 
We hope to raise £11,500 this year to increase Hospice Ethiopia’s capacity to care for more patients as they approach the end of their lives. We hope to raise enough money to fund an additional nurse and a new Social Worker to the team, but we can’t do this without your help.

One donation, twice the impact.

Donations to this project will be matched for 7 days, from 12pm on Tuesday 3rd December – Tuesday 10th December 2024.  So, every pound you give during that period means two pounds for Hospice Ethiopia.
 
Only donations made through the official Big Give website will count for match funding so put the date in your diary now! 

Ephrem visits the United States

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Executive Director of Hospice Ethiopia, Ephrem Abathun has recently returned from a 3 week visit to the United States. He reported that “it was a blessing to visit partners of Hospice Ethiopia across the country”. He began his trip in Connecticut, with a visit to Yale New Haven Hospital with Dr Eleanor Reid where he experienced first-hand palliative care being given in the Emergency Department. This has relevance for the challenges of the medical teams in Ethiopia caring for patients in their Emergency Departments where the families expect curative treatment to be provided even when their loved one is dying.

Ephrem’s next stop was Chicago to meet Professor Joshua M. Hauser from Northwestern University, who was involved in providing online palliative care training at Addis Ababa University earlier this year. Following this he met Mahlet Bejiga and her family in Boston, who have been long-term supporters of Hospice Ethiopia. They, along with other supporters, hope to start a new not-for-profit organisation in the US ‘Hospice Ethiopia USA’. In Las Vagas Ephrem continued his trip with a stay with Stephanie Council and a visit to Nathan Adelson Hospice before ending his trip in Sacramento with a visit to Snowline Hospice, who have previously provided support for Hospice Ethiopia.